Isabella Danielle, born at 24 weeks and 1 day, 1lb 11oz, 12.5in

Zachary Michael, born at 36 weeks, 5lb 13oz, 18.5in

Alexander Charles, FULL TERM, 7lb 1oz, 20in

Sunday, April 24, 2011

Happy Easter

We spent the long weekend at Gigi's house and had a blast! Friday night was a fish fry at Pam and Frank's house. Ashlee and Bryce brought over their son Kolton, Bella and him have gotten to play together a lot and really like hanging out. Saturday we got to color eggs, play with Dalten and Brayden (Bella and Zach's cousins) and have a fun Easter Egg hunt. Sunday we were fortunate to go to church with Gigi and then had Easter breakfast. The kids were so cute and so full of energy, please enjoy the pictures of this past weekend and hopefully the Lord blessed you all with a great Easter weekend too.

Playing with Kolton Friday night

Easter Fun on Saturday with the whole family! First Easter Egg hunt with the Cousins. Unfortunately, we only took video of the hunt.



Dressed in our Easter finest


After Easter Service and Breakfast the kiddos were all tuckered out!

Tuesday, April 12, 2011

BACK TO WHERE IT ALL BEGAN

For some time now we have wanted to take Isabella back to Charlottesville, VA…her birth place. About a month ago, we booked a trip for this past weekend. We were able to find a direct flight from Houston to Richmond, VA; then there is about an hour and twenty minute drive to C’ville. Both kids did great flying there and back. Zach slept the entire leg of both flights. Isabella played with her toy computer for about 40 minutes and then fell asleep, both times. We were able to catch up with so many people while we were there; it was awesome!

Thursday we didn’t make it into town until 7:30, so we went straight to eat. While eating Mellow Mushroom, Lauren and Abby stopped by to give us welcome hugs. And Lauren got to hold her godson for the first time!


Friday we took our time getting up, ate a little bit at the hotel and then headed over to the NICU. We were able to see at least 15 staff that took care of Bella including Dr. McGahren, the doctor that performed her intestinal surgery. Most of you know that I am a Yankees fan, well so is Dr. McGahren…his scrub hat is actually Yankee print fabric. So when he picked her up, he looked at her and said, “Can you say ‘Go Yankees’?” To which she replied in the cutest high pitched loud voice ‘GO YANKEES’, while swinging her arms. But probably the most amazing thing to us is that Bella ran up to, hugged and very willingly talked to each nurses/nnp/dr that came out to visit with her. It was almost like she knew they were a part of her life. I mention this because most often times she is shy around people she has just met and stays reserved for at least 15 minutes or so. Not on Friday or any other time during our visit to the NICU. (Of course Zach was in heaven having all the ladies pass him around making goo-faces at him.)

Susan, Alix, & Ellen

Dr. McGahren


After about an hour and a half there, we took a familiar walk through the hospital to The Corner. For those of you that are unaware, the hospital Isabella was born at is the University of Virginia Medical Center, which is the teaching hospital for the University of Virginia and is actually attached to the campus. The retail/restaurant shopping area adjacent to campus is called The Corner. And the apartment we lived in during Isabella’s hospital stay is roughly a quarter of a mile down from The Corner. Most of the time we walked back and forth from the hospital instead of driving, so taking this long walk from one side of the hospital to the other was pretty ceremonial. Many times that walk through the buildings, before having the rush of the weather awaken your senses, was a solid 7 minutes of decompression from the reality we were facing. Now we could walk our daughter through those halls as a miraculous success story. It was an amazing feeling. Our plan was to go up to the clothing store, load up on UVa apparel, go over to the church where she was baptized, and then let her walk around on campus for a little bit. Isabella got wrapped up with the soccer, basket-, and foot- balls while there; kicking and throwing them everywhere. By the time we stepped out of the store the weather had changed and began to rain. We decided to go get the car instead of walk them around in the drizzle. Unfortunately this put Bella to sleep, so the pictures we got at the church are of her passed out in our laps.



And this also meant no playing on campus. We had a back-up plan and decided to head downtown to the Children’s Discovery Museum to avoid the rain. Lauren and Abby met us down there for a quick lunch along with a trip to the yogurt shop. Afterward we headed back to the room for a quick rest before dinner with more friends.

Saturday was the big day though. Kam helped me plan a small picnic at the park for the staff we knew as well as some other preemies we met while in Virginia. We had a great turn out despite a good chill in the air and a little drizzle towards the end.

Emily

Abby

Isabella Fayth (in the stroller)

GIRL POWER!


Later that night we headed back up to the NICU to catch more of the medical staff and went during shift change hours. That way we could catch day and night folks all in one stop. Once again little miss didn’t skip a beat when it came loving on and “thanking” all of those who took care of her.
Lindsay and Jen


Then on Sunday we had a great surprise. We were able to meet up with Colleen, the nurse that was as close to a primary as Bella could get. We were able to have breakfast and chat for over an hour with her and her family.

All in all it was a very nice trip and great to share the progress of our precious angel with the people that did God's work to ensure she had a fighting start to her early entrance into the world. I think Charlottesville will always be our second home, no matter where we live; and the people that touched our lives over those 4 months will be like family.

Monday, April 4, 2011

Best buddies

So Zach and Bella have really discovered playing with each other. They both get up at 5am and want to watch cartoons and play in mom and dad's room. Zach is now very mobile and able to crawl anywhere on and over almost anything. He is even pulling himself up and trying to stand. Bella thinks this is hilarious and plays chase with Zach. She runs over yells Chase you and runs about 15 feet away and then plops down and laughs while Zach crawls toward her. She then either gets up and runs or crawls another 20 feet and the game starts all over. They made 3 circles around the family room furniture this evening, it is a riot. Here are some pictures of them enjoying play time with one another.







Much love to all and may the Lord be with you.

Friday, April 1, 2011

KV/Ther-Rx and MOD

This is the latest email...

Hello,

As promised, I am providing the latest updates regarding March of Dimes, Ther-rx and Makena. Please see the messages below. March of Dimes will also be posting this on our national website. I think you will find the below posts of great interest and benefit to you and your supporters.

Many thanks,
Zakiya Larry

March 30- March of Dimes Posting The March of Dimes has issued the following statement today, Wednesday, March 30, which you may use with your volunteers, March for Babies teams, and local news media. The March of Dimes welcomes today’s FDA statement, which lays to rest any ambiguities about whether specialty pharmacies can continue to compound 17P. It would be a tragedy to interrupt access to this important drug. To date, Ther-Rx Corporation’s handling of the launch of Makena has been unsatisfactory to the March of Dimes and to the families we represent. We’ve asked Ther-Rx in writing and in discussion to substantially lower the price of Makena and to expand coverage for patient financial assistance. We’re waiting for their public statement on this matter, which we expect will occur within the next week. The March of Dimes number one concern is the health of mothers and babies. We will continue to work in a variety of ways to ensure that all medically eligible women have access to progesterone therapy. Click here for more helpful information.


TODAY- April 1- March of Dimes PostingToday, Ther-Rx Corporation responded to our demands by reducing the list price of Makena from $1,500 to $690 and expanding patient financial assistance. While these are steps in the right direction, we have decided to terminate our contract with Ther-Rx. Please see the attached statement on our web site for the media and letter to Ther-Rx conveying this decision.


Zakiya Larry
Communications Director

March of Dimes
11044 Research Blvd.
Building A, Suite 210
Austin, TX 78759
Direct Line (512) 568-3442
General (512) 477-3221
Fax (512) 477-2788