Sorry we didn't write this one last night. Both of us have been running on an average of 4-5 hours of sleep a night and I think it caught up with us yesterday. Luckily Chris is even still asleep this morning.
I must say, I don't really know what to write this morning. We spent quite a bit of time yesterday on our visits trying to understand some more of the equipment, how it works, how it reads, and what it means in terms of our little baby girl. As usual the staff is tremendously helpful and willing to talk about anything you need or want. Most of the day Bella was doing well but still continued to have her saturation problems on occassion. According to the chart, it appears they suctioned her more times than we wanted to see. The nurse yesterday (Jackie2) did mention that her murmur sounded much better. However, considering it was originally moderate to large, we have to be prepared for the case that she might still need a second treatment of the medicine to close it. Unfortunately, we let that discourage us last night. It is difficult to hear from the doctors that she is a "superstar" and then to see her have these dips; it kind of perpetuates our rollercoaster. I honestly believe that Bella was just tired last night. The respiratory therapist said that her settings on the vent were great and had been very low most of the day. Even though she is taking the medicine for the duct closure, they are still trying to ween her from the vent. There were several times yesterday that we saw the vent set at 21% O2. So we know that having these low settings all day drained her by late yesterday evening. We are just so fortunate to have this kind of care for our angel; it is amazing what they can identify and how quickly.
Now the God of hope fill you with all joy and peace in believing, that ye may abound in hope, through the power of the Holy Ghost.
We wish you all a wondeful, spirit filled day; for God so loves you!