Today was a nice day! Our precious girl continues to bring us smiles, laughs, tears, and deep breaths. As usual, we started off at 6am to check with the night nurse before she leaves (Colleen was back last night). Once again she seemed to have a fairly stable night, but they had noticed a few things about her blood gases, disaturations, and vent settings. They decided to make a few changes; lower the pressure as to which the machine is blowing in and increase the number of breaths per minute. Unfortunately that did not seem to do the trick. By the end of the day they increased the vent pressure and increased the breaths per minute again. The decision was to give her just a little more help to stabilize her saturation. Luckily when we made the trip to "tuck her in" at 10pm tonight, her O2 saturation was very stable. She was resting comfortably and even keeled. I was able to watch rounds during the lunch hour; that was hard. I think it was the most time I had seen them spend in front of her. It was hard to distinguish everything they mentioned. Most of what I could take away was that they are going to increase her caffeine shots (which are supposed to aid in stimulating her to breath on her own), they will probably not give her another round of treatment for the PDA even if it has not closed up, they want to get back to feeding her again, and they are strongly monitoring her breathing. Isabella has been so strong thus far and we are most thankful for that.
Chris was busy with his parents all day getting our new home set up. I spent most of the day on my own. The prior day I had felt like I was a burden with them having to bring me back to the hotel so often to pump. This way they could make several trips to various stores to get all the items we needed for the apartment. And they did a great job; now we have a bed, a futon for a couch, a card table for a dining area and most of our basic necessities for around the house. It was also a good opportunity for me to spend mommy time with Bella, finish a few things that were important to me, and just have a moment alone to let so much sink in. I was actually able to get in touch with several of you including a call to my pastor from New Braunfels; it is always nice talking to him. I am also looking forward to going to church in the morning.
Spending so much time with Bella yesterday let me enjoy and appreciate so many small qualities about her. Her tiny body is simply precious and unbelievable. When she lays on her left side she likes to fold up her right arm and grab her ear. When we lean in to talk to her she recognizes our voices and flutters her little eyes; she moved them so much at one point yesterday we were able to see the white in her eye. When she wants to stretch out she is able to pull those petite (but not for long) legs out of her swaddling and prop them up on her bedding. And when we went to kiss her good night, Colleen had put a miniature pink bow on the right side of her head...it was so adorable. Chris got a picture with his phone, if we can upload it we will. What I love the most is that she radiates so much personality; you wouldn't think that is possible at such a point in gestation, but she definitely has quite a bit of it.
I thank God for all the blessings he has shown our family this past week; Bella's first three days, the minor brain bleeds, the detection of the PDA, the staff's quick responses, Bella's first week, even the partial closure of her murmur. Our faith is stronger than ever and we continue to seek God's wisdom.
Therefore take no thought, saying, What shall we eat? or, What shall we drink? or, Wherewithal shall we be clothed? (For after all these things do the Gentiles seek:) for your heavenly Father knoweth that ye have need of all these things. But seek ye first the kingdom of God, and his righteousness; and all these things shall be added unto you.
Once again we thank you for your many prayers and keeping Bella in your thoughts. The Delange Family wishes you a blessed and smile filled day. Take care and much love!!!